Project 4: XiaoxBao Community Internationalization and Bilingual Operations

Project Background

XiaoxBao Community is a comprehensive charity platform composed of multiple disease-specific patient communities, currently including more than 10 vertical patient communities such as Xiaoyibao (Pancreatic Cancer), Xiaojianbao (GIST), and others. To better serve international patient groups and promote exchange and collaboration among global patient communities, this project aims to advance the comprehensive internationalization of XiaoxBao Community.

Project Goals

• Brand Internationalization: Establish a unified international brand image, including English naming, logo design, and visual identity system
• Bilingual Content: Build a Chinese-English bilingual content system covering official website, social media, promotional materials, etc.
• Community Interconnection: Establish connections with internationally recognized patient organizations, promote experience exchange and resource sharing
• Multi-platform Operations: Build an international social media matrix to expand global influence

Core Values

• Serve International Patients: Enable more non-Chinese-speaking users to understand and benefit from XiaoxBao Community's experience and resources
• Promote International Exchange: Build a bridge between Chinese patient communities and international organizations
• Enhance Community Influence: Increase XiaoxBao Community's visibility in the global patient charity field through international operations
• Learn from International Experience: Learn from operational models of mature organizations such as PanCAN and Let's Win PC

Project Implementation Plan

Phase One: Bilingual Content and Website Development

1. English Social Media and Content Updates

• Community Introduction Materials

  • Design and create English version of community introduction based on existing Chinese PPT
  • Content includes: community history, mission and vision, service content, success stories
  • Output formats: PDF, PPT, graphic posters

• Official Website Content Expansion

  • Build English content based on existing website https://www.xiaoyibao.com.cn
  • Key pages: About Us, Service Projects, Patient Stories, Volunteer Recruitment, Contact Information
  • Ensure synchronous update mechanism for Chinese and English content

• New Website Development

  • Create international domain website: https://www.xiao-x-bao.com.cn
  • Positioning: English main site for international users
  • Technical requirements: responsive design, multilingual switching, SEO optimization

2. International Brand Naming and Visual Design

• Naming System Specifications

  • XiaoxBao Community (parent community)

    • Chinese: 小X宝社区
    • English: XiaoxBao Community / Xiao-X-Bao Community
    • Positioning: comprehensive platform including 10+ disease-specific communities

  • Xiaoyibao (Pancreatic Cancer Patient Community)

    • Chinese: 小胰宝
    • English: Xiaoyibao / PancrePal
    • Benchmark organizations: PanCAN, Let's Win PC, PatientsLikeMe
    • Positioning: vertical community specializing in pancreatic cancer patient services

• Logo and Visual Identity System

  • Design logo meeting international aesthetics (retaining Chinese elements)
  • Develop brand color specifications, font specifications, application specifications
  • Output: logo source files, brand manual, application examples

Phase Two: International Community Connections and Collaboration

3. Establish International Organization Connections

• Key Partnership Organizations

  • PanCAN (Pancreatic Cancer Action Network)

    • Largest pancreatic cancer patient organization in the United States
    • Collaboration directions: clinical trial information sharing, patient education resource exchange

  • World Pancreatic Cancer Coalition

    • Global coalition of pancreatic cancer organizations
    • Collaboration directions: join coalition, participate in international conferences, joint advocacy

  • Let's Win PC, PatientsLikeMe and other organizations

    • Learn operational experience, explore collaboration possibilities

• Forms of Collaboration

  • Information exchange: regular sharing of patient education resources, clinical trial information
  • Event linkage: jointly host online patient education events
  • Experience exchange: mutual visits for learning, case sharing

Phase Three: International Social Media Matrix Building

4. Establish Multi-Platform Social Media Accounts

• Platform Selection and Positioning

  • X (Twitter): rapid news release, academic updates sharing
  • Discord: patient community interaction, volunteer collaboration
  • Reddit: in-depth discussions, experience sharing
  • Telegram: instant communication, patient mutual aid groups
  • LinkedIn: professional networking, institutional collaboration, volunteer recruitment

• Content Strategy

  • Patient stories and experience sharing
  • Medical information and popular science content
  • Clinical trial information updates
  • Community activities and results showcase
  • Volunteer recruitment and project progress

• Operational Standards

  • Develop content publishing plan (frequency, topics, formats)
  • Establish multilingual content review mechanism
  • Set interactive response standards (response time, professionalism requirements)

Project Preparation Work

Research and Learning

1. In-depth Study of Benchmark Organizations

• PanCAN (pancan.org)

  • Research content: website structure, content classification, user service system
  • Key learnings: patient resource center, clinical trial matching, volunteer management

• Let's Win PC (letswinpc.org)

  • Research content: community operation model, patient interaction mechanism
  • Key learnings: online event organization, patient empowerment strategies

• PatientsLikeMe (patientslikeme.com)

  • Research content: data-driven community operations, patient experience sharing platform
  • Key learnings: user persona building, personalized service recommendations

2. Clinical Trial Ecosystem Research

• World Clinical Trials

  • Understand global clinical trial information platforms
  • Study how to provide trial matching services for patients
  • Explore data integration possibilities with international trial registries

• ClinicalTrials.gov

  • Learn trial information display standards
  • Research patient-friendly trial information presentation methods

Project Timeline (Recommended)

• Weeks 1-2: Complete benchmark organization research, output analysis report
• Weeks 3-4: Complete international brand naming plan and initial logo design
• Weeks 5-6: Complete English community introduction PPT and official website English content framework
• Weeks 7-8: Establish at least 3 international social media accounts, publish first batch of content
• Weeks 9-10: Complete new website development and launch
• Weeks 11-12: Establish formal connections with at least 1 international organization, complete project summary

Success Metrics

• Content Output: Complete 10+ English articles, 1 set of brand VI system, 1 bilingual website
• Social Media: Establish accounts on 5 platforms, total followers reach 500+
• International Collaboration: Establish connections with at least 2 international organizations
• User Reach: Monthly visits to website English pages reach 1000+

Recommended Team Division

• Content Team: Responsible for Chinese and English content creation, translation, and review
• Design Team: Responsible for logo design, visual specifications, promotional material creation
• Technical Team: Responsible for website development, multilingual system building
• Operations Team: Responsible for social media operations, international organization outreach

Important Notes

• Cultural Sensitivity: Content translation needs to consider Chinese-Western cultural differences, avoid misunderstandings
• Medical Compliance: All medical-related content must be reviewed by professionals to avoid misleading
• Data Security: Pay attention to user privacy protection and data compliance in international operations
• Brand Consistency: Ensure Chinese and English content maintain consistency in values and brand tone

Resource Requirements

• Personnel: English content creators, designers, front-end developers, social media operators needed
• Tools: Translation tools (DeepL, ChatGPT), design tools (Figma, Canva), website building tools
• Budget: Domain purchase, server rental, design outsourcing (if needed), social media promotion (optional)

Contact and Support

• Project Mentor: Contact your project mentor for guidance
• Technical Support: Seek help in project group or GitHub Issue when encountering technical problems
• Content Review: Submit medical professional content to PMC for review